Know Polyhydramnios' Mission
We aim to advance the standard of care for pregnancies complicated by Polyhydramnios, to promote the developmental potential of infants whose gestations were complicated by Polyhydramnios through earlier intervention and proper testing, and to understand the causes, effects, and long-term outcomes of Polyhydramnios.
There are 140 million pregnancies resulting in a live birth worldwide every year. Roughly 2 million of them are complicated by polyhydramnios.
Of 1.3 million polyhydramnios pregnancies labeled idiopathic, 300,000 infants get diagnosed with an anomaly before their first birthday.
35% of pregnancies complicated by Polyhydramnios are moderate to severe and 6 out of 7 of those are linked to a genetic anomaly.
There is a gap in care for Polyhydramnios somewhere between the transition from Obstetrics to Pediatrics. Mothers commonly find themselves lost trying to get proper testing and early interventions for their babies. In their advocacy journey, they often wear the hat of doctor, researcher, and scientist before they finally find the help they need. We are working with industry leaders to bridge the gap. Here's how you can help...
Our organization needs awareness, the medical community needs continued research surrounding Polyhydramnios, moms need advocates, and babies need easier access to proper testing and early intervention.
Help make the difference by spreading awareness, making a donation, or choosing to sponsor one of our events.
When I found out I had polyhydramnios I joined a support group and learned I was not alone in my fears. I found out that there was a whole community of babies having problems and moms searching for answers. I felt compelled to do something for this community and thankfully, some other amazing people did too.